Видео ютуба по тегу Organisation For Rare Disease India

The Rare Disease Challenge | Lived & Leading: Voices For Better HealthCare Ep 9
The Rare Disease Challenge | Lived & Leading: Voices For Better HealthCare Ep 9
Episode #42 | Close Ties, Hidden Risks | Understanding Consanguineous Marriages | Rare Info Series
Episode #42 | Close Ties, Hidden Risks | Understanding Consanguineous Marriages | Rare Info Series
Episode #41 New born Screening : Line of Defence Against Rare Diseases | ORDI’s Rare Info Series
Episode #41 New born Screening : Line of Defence Against Rare Diseases | ORDI’s Rare Info Series
Episode #40 | Hereditary Angioedema Uncovered | Insights & Innovations for Better Living | ORDI
Episode #40 | Hereditary Angioedema Uncovered | Insights & Innovations for Better Living | ORDI
Episode #39 Sleep Issues in Children with Genetic Syndromes | ORDI India
Episode #39 Sleep Issues in Children with Genetic Syndromes | ORDI India
Voice of Healthcare | Bridging the Gaps in Rare Diseases
Voice of Healthcare | Bridging the Gaps in Rare Diseases
Bridging the Gaps in Rare Diseases | Virtual Session
Bridging the Gaps in Rare Diseases | Virtual Session
Episode #37 Prader–Willi Syndrome – A Journey from Neonate to Infancy | RARE INFO SERIES | ORDI
Episode #37 Prader–Willi Syndrome – A Journey from Neonate to Infancy | RARE INFO SERIES | ORDI
Episode #36 | Hope Beyond Gene Therapies | ORDI Rare Info Series
Episode #36 | Hope Beyond Gene Therapies | ORDI Rare Info Series
How a Journalist Revealed Failures in India’s Rare Disease Plan
How a Journalist Revealed Failures in India’s Rare Disease Plan
Episode #34 | Redefining Rare From Diagnosis to Dignity | ORDI | Rare Info Series
Episode #34 | Redefining Rare From Diagnosis to Dignity | ORDI | Rare Info Series
Episode #33 Hemophilias from genetics to therapy | Rare Info Series | ORDI
Episode #33 Hemophilias from genetics to therapy | Rare Info Series | ORDI
Episode #32 | Early Identification & Intervention for Children with Disabilities | ORDI
Episode #32 | Early Identification & Intervention for Children with Disabilities | ORDI
Neuromuscular Club Session 39 | Cardiomyopathy in DMD & Evolving Treatment Paradigms
Neuromuscular Club Session 39 | Cardiomyopathy in DMD & Evolving Treatment Paradigms
Dr. Ashwin Dalal Explains Rare Genetic Diseases in India
Dr. Ashwin Dalal Explains Rare Genetic Diseases in India
Episode #31 SRT and Gaucher’s Treatment India Perspective | Dr. Radha Rama Devi | Rare Info Series
Episode #31 SRT and Gaucher’s Treatment India Perspective | Dr. Radha Rama Devi | Rare Info Series
Episode#30| Genetics of Imprinting Disorder | Rare Info Series | Organization for Rare Disease India
Episode#30| Genetics of Imprinting Disorder | Rare Info Series | Organization for Rare Disease India
Episode #29 | Growing up with CF, Hope and Help | Rare Info Series | ORDI
Episode #29 | Growing up with CF, Hope and Help | Rare Info Series | ORDI
Episode #28 | Investigations, Surveillance and Monitoring in CF | Rare Info Series | ORDI
Episode #28 | Investigations, Surveillance and Monitoring in CF | Rare Info Series | ORDI
Episode #26 | Clinical Trials for Rare Diseases: Basics and Latest Developments | ORDI
Episode #26 | Clinical Trials for Rare Diseases: Basics and Latest Developments | ORDI
Episode #25 | Airway Clearance: Breathing Easier with Chest Therapy | ORDI
Episode #25 | Airway Clearance: Breathing Easier with Chest Therapy | ORDI
Episode #24 | Respiratory Care: “Breathing Easier – Identifying and Preventing Lung Infection | ORDI
Episode #24 | Respiratory Care: “Breathing Easier – Identifying and Preventing Lung Infection | ORDI
Episode #23| Understanding Cystic Fibrosis | A Parent’s Guide to the Basics | Rare Info Series
Episode #23| Understanding Cystic Fibrosis | A Parent’s Guide to the Basics | Rare Info Series
Episode #22 – Blueprint Breakdown: Intro to Genetic Testing | ORDI
Episode #22 – Blueprint Breakdown: Intro to Genetic Testing | ORDI
Episode #21 | Clinical Manifestations and Management of Osteogenesis Imperfecta
Episode #21 | Clinical Manifestations and Management of Osteogenesis Imperfecta